Dravet Syndrome
Dravet Syndrome is a rare and debilitating form of epilepsy that affects many children around the world. It’s a life-altering condition, leaving its sufferers in need of full time care and support from their families and community.
But while it can be devastating for those affected, there’s hope: more and more people are joining together to provide understanding and compassion to those with Dravet Syndrome.
It’s easy to feel alone when you have a chronic illness – but you’re not. People everywhere are coming together in solidarity with those living with Dravet Syndrome, offering friendship, resources, and much needed emotional support.
If you want to learn more about seizures, read Understanding Seizure Disorders
Together we can make a difference in the lives of these individuals by creating an accepting environment where they are welcomed as part of our collective family.
Is CBD Safe For Children Under The Age Of 10?
As the saying goes, “A healthy child is a happy child”. In today’s world of modern medicine, many families are now considering alternative treatments for children suffering from Dravet Syndrome – including CBD oil.
Epidiolex, an FDA approved CBD oil for epilepsy, has been found to be effective in reducing seizure frequency and severity among those who suffer from Dravet Syndrome. However, there are important distinctions between Epidiolex vs CBD oil like Genesis Blend Full Spectrum CBD Oil that need to be taken into consideration before administering any kind of treatment plan.
Full spectrum CBD Oil contains multiple cannabinoids such as CBDa ,THC, CBC, THCa as well as natural terpenoids. All together provide greater syngeneic results. On the other hand, Epidiolex only contains isolated cannabidiol (CBD) and no other cannabinoids and is mixed with additives, such as alcohol and sucrose. Both are not recommended to be given to those that experience seizures. This makes Epidiolex not really appropriate when prescribing medications for young patients with Dravet Syndrome or other epilepsy disorders versus natural full spectrum CBD oil mixed with benefiting MCT oil.
Generally speaking, unless mixing with other medications, and that should not be done with CBD oil unless you have spoken with the prescribing doctor. Full Spectrum CBD oil is the safest natural option.
Read our blog about Is CBD Safe for Kids? Pros, Cons, and Legalities.
Find a reputable manufacturer and retailer such as the Kentucky Cannabis Company and Bluegrass Hemp Oil.
As we move on, we will look at whether using CBD oil is an overall healthy choice for kids under 10 years old with Dravet syndrome.
Is CBD Oil Healthy?
CBD oil is becoming increasingly popular due to its potential health benefits, but many are unsure of how it might affect those with Dravet Syndrome.
Does CBD oil have a positive effect on the condition? Are there any risks associated with taking it? These are essential questions for anyone considering using CBD as an alternative treatment for Dravet Syndrome.
Studies suggest that CBD may help reduce seizures in people with severe epilepsy and may also improve quality of life in some cases.
The effects of CBD may vary from person to person, so it’s best to talk to your doctor about what option would work best for you and your specific needs.
Generally speaking, unless mixing with other medications, and that should not be done with CBD oil unless you have spoken with the prescribing doctor, Full Spectrum CBD oil is the safest natural option. Parent reported studies report better results with full spectrum CBD oil vs isolated CBD oil such as Epidiolex.
Make sure you find a reputable manufacturer such as Kentucky Cannabis Company and Bluegrass Hemp Oil.
With all this in mind, let’s move onto the next question: Is CBD oil safe for those under 18?
Is CBD Oil Safe For Under 18?
Although research on CBD oil is still in its early stages, there are promising signs that it holds potential for treating a variety of conditions.
In particular, products with high concentrations of CBD such as Bluegrass Hemp Oil or Genesis Blend CBD Oil have been studied as treatment options for Dravet Syndrome and Lennox-Gastaut Syndrome.
Recently, the Food & Drug Administration approved Epidiolex—a pharmaceutical grade version of CBD oil—for use in a rare forms of epilepsy: Dravet syndrome
This approval has opened up new possibilities for those suffering from these life-altering conditions to explore treatments which may help alleviate their symptoms.
Epidiolex only contains isolated cannabidiol (CBD) and no other cannabinoids and is mixed with additives, such as alcohol and sucrose. Both are not recommended to be given to those that experience seizures. This makes Epidiolex not really appropriate when prescribing medications for young patients with Dravet Syndrome or other epilepsy disorders versus natural full spectrum CBD oil mixed with benefiting MCT oil. For more about this read Epidiolex vs. CBD oil Genesis Blend
It also highlights the fact that CBD oil could be a viable option for other medical issues beyond epilepsy.
While we suggest our Genesis Blend Full Spectrum CBD oil for children we also have CBD gummies for Kids.
Read about how to pick the Best CBD Gummies for Kids
Having explored some of the possible applications of CBD oil, let’s now take a look at what benefits taking products with CBD oil might bring.
What Are The Benefits Of Taking Products With CBD Oil?
CBD oil is becoming increasingly popular as a natural remedy for many illnesses, including Dravet Syndrome. But what exactly can it do to benefit people suffering from this rare disorder?
Here are some of the ways that CBD oil may help those living with Dravet Syndrome:
- It can reduce seizures and other involuntary movements associated with the syndrome
- It helps improve sleep patterns and reduces anxiety levels
- It has anti-inflammatory properties which can be beneficial in reducing inflammation caused by the condition
- It supports cognitive development and mental health related issues.
These benefits have been seen time and again through research studies, but overall there’s still much more to learn about how CBD oil really works when it comes to treating Dravet Syndrome or any other medical condition.
Learn more about Understanding Autism Spectrum Disorder: Signs, Symptoms, and Treatment
With further study, we may one day see even greater results for those who suffer from this debilitating illness. For now, however, it’s safe to say that products containing CBD oil offer potential relief for many individuals struggling with Dravet Syndrome.
Frequently Asked Questions
What Are The Long-Term Effects Of Dravet Syndrome?
Long-term effects of a condition can be devastating and deeply affect an individual’s quality of life. We may struggle to understand the potential implications that such a situation could have, but it is important to recognize them nonetheless.
The long-term effects of this particular condition can include issues with physical development, cognitive impairment, behavioral challenges, seizures, and even increased risk for sudden death. These are understandably scary realities for anyone facing such an illness – but there is hope in understanding these symptoms so that appropriate care can be provided.
Is There A Cure For Dravet Syndrome?
Devastatingly, there is currently no cure for Dravet Syndrome. This heartbreaking reality leaves many families wondering what the future holds for their loved ones affected by this rare seizure disorder.
While the search for a cure continues, medical professionals have developed treatments to help manage symptoms and improve quality of life. By staying informed on research developments and utilizing available resources, family members can strive to create an environment that supports those living with Dravet Syndrome every step of the way.
Are There Any Other Treatments Besides CBD Oil For Dravet Syndrome?
Are there any treatments beyond CBD oil to manage Dravet Syndrome?
The answer is yes! While research into the effects of CBD on individuals with this rare form of epilepsy has been promising, there are other methods available.
Patients can explore lifestyle changes such as dietary modifications and exercise that may help minimize their symptoms. Additionally, medications like anti-seizure drugs, antidepressants or anticonvulsants have shown some success in reducing seizures associated with Dravet Syndrome.
All of the anti-seizure drugs, antidepressants or anticonvulsants have side-effects. These side effects can range from aggression, increased seizures, organ damage, the list goes on. Make sure to read and ask about the side effects of any medications. Also many doctors try to prescribe multipule AED’s drugs together. This is called polypharmacy. Polypharmacy has never been researched as a treatment for epilepsy. Research on polypharmacy on children and polypharmacy shows that it can be dangerous for children.
It’s important for those living with this condition to talk to a doctor about all the options and drawbacks of each.
Are There Any Lifestyle Changes That Can Help With Dravet Syndrome Symptoms?
For those living with Dravet Syndrome, the idea of finding relief can be daunting. However, there are lifestyle changes that can help reduce its symptoms.
Take for example little Sam: he was diagnosed at 4 years old and since then his parents have been researching different treatments and lifestyle changes to help him lead a more comfortable life.
They found that by introducing better sleep habits, like keeping regular bedtimes and limiting screen time before sleeping, enabled Sam to experience fewer seizures throughout the day. This also helped him focus in school; something that would not have been possible without implementing these small but significant lifestyle tweaks.
Are There Any Support Groups For Those Living With Dravet Syndrome?
Living with a chronic illness can be difficult, but having the support of others who understand what you are going through is invaluable.
For those living with Dravet Syndrome, there are various online and in-person support groups available to help them navigate their health journey. These groups provide an opportunity for members to connect on a deeper level and share experiences, tips, advice and words of encouragement.
For more Learn about Lennox-Gastaut Syndrome Symptoms, Causes, Treatments, and CBD Oil
By joining one of these communities, individuals dealing with Dravet Syndrome can find comfort knowing that they’re not alone – creating a sense of belonging while also helping to reduce stress levels associated with managing the condition.
Conclusion
Living with Dravet Syndrome can be challenging, but it doesn’t have to define you. With the right treatments and lifestyle changes, you can take control of your life.
Even if there’s no cure at this time, people living with this condition don’t have to face it alone. Support groups are available for those struggling with symptoms and long-term effects of Dravet Syndrome.
My hope is that one day we will find a way to help everyone affected by Dravet Syndrome live full lives without limitations. Until then, I encourage anyone living with this condition to reach out for support and know that they are not alone on their journey.